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18 Kalpana
gupte.sankalp@gmail.com
Location: Pune, India
IP: 203.109.125.42
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 Thursday 27-May-10 11:42:27 CDT   |
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| Good site. I think my mother has lipedema and maybe me too. It's nice to know that there is a name for this condition and that there are others with the same condition. In fact I never knew anything about lipedema and I do not think any of the doctors here know anything. What is disconcerting, that neither dieting nor exercising seems to be of any use. I do Yoga too. Maybe if it is not cured, it can be contained? My Mom is 80 and cannot even stand, let alone walk. She has got lymphoedema too. |
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17 Betty Martin
bmwmv@verizon.net
Location: Mass
IP: 90.18.203.244
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| Thursday 22-Apr-10 06:15:33 CDT |
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My daughter has lipedema and I've been researching it on and off since 2001. Finding out that you have Lipedema IS very psychologically challenging and creates diffiuclty for most people. Support is needed so that the person can absorb the fact that part of their body IS to some degree out of control. BUT
the GOOD news is that we are no longer in 1941 and there are new discoveries being made constantely. Your web site is GREAT... EXPAND it and organize ...make a data base so members can join give support to each other AND constantly address DOCTORS to recognize the disease.
I write to the Univesity of Texas often and ask them to research ... Lipedema is a disease of LIPODYSTROPHY and yes although it's relatively unknownn it effects many more people than doctors recognize.
Here is a link to a doctument that some may find difficult to look at... Don't be afraid... TAKE that FEAR and turn it into motivaation to make the disease known, organize and soon there will be plastic surgeons who will be wanting to do this surgery everywhere.
http://woundsinternational.com/pdf/content_207.pdf
This is s pdf file put together by Jobst a manufacturer of support hose, but it has some very good information in it.
With the economy being compromised people are doing less cosmetic surgury that is not medically required. Surgeons will be encouraged to branch out. I had written to a doctor in FRiedburg Germany where they have been doing the operation for a few years. He said it takes repeated operations so going to Germany is possible but not so practical... UNLESS of course you organize several people to ravel together yes?
I am saving your website an forwarding it to my daughter as well.
Remember this girls... life gives us ALL kinds of things that we don't welcome... and usually the only difference is that we don't know they are coming at us. I've been studying this for a long time and I don't believe that EVERYONE manifests to the largest degree. Knowing what the problem is and trying to avoid things that cause weight gain...such as over eating and unfortunately pregnancy... can help.
Also people with Lipedema store long chain fatty acids which are found in most food... a safe oil to use is coconut oil as it is a medium chain fatty acid which people with lipoedema can digest instead of storing.
There are beautiful people out there in the world today who are driving to work with the raid on and they don't have Lipedema, but unfortunately other things lurk in their future... that will change their lives... sometimes its MS, or cancer, a head on accident, life has many forms but HOPE and LOVE can always serve us well.
Have HOPE and LOVE yourSELF and others around you.
Love and Light,
Betty |
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16 Ginger
vslater51@hotmail.com
Location: USA
IP: 71.164.66.67
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| Wednesday 14-Apr-10 21:17:13 CDT |
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A friend told me about this site and I'm here to wish everyone who struggles with chronic illness many blessings and courage in adversity.  |
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15 Linkow Mcaria
sine@sinepenis.com
http://www.sinepenis.com
Location: USA
IP: 189.26.42.18
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| Saturday 20-Mar-10 16:16:15 CDT |
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| If you were hoping to find something that works, dont despair. There is one penis enlargement technique that all doctors actually recommend. Visit Us www.sinepenis.com |
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14 KJ Fleming
kjfmldpt@aol.com
Location: Western Massachusetts
IP: 75.130.105.164
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| Sunday 28-Feb-10 23:44:27 CST |
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| A fellow Dr. Vodder School certified lymphedema therapist and instructor passed this website on to me. It is so good to see that this information and support is out there for those with Lipedema. I will pass this site on to my patients and share it with my students as well. keep up the good work. Visit our website to find a therapist in your area to treat you at www.vodderschool.com. |
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13 Lisa
tlnbeeks@yahoo.com
Location: Indiana
IP: 75.206.82.196
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| Thursday 28-Jan-10 13:39:07 CST |
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| Finallly, a place to turn..Thank you!!! |
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12 joy walker
jwalker8869@yahoo.com
Location: bringht In USA
IP: 72.49.237.27
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| Monday 07-Sep-09 20:57:57 CDT |
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i have asked about this for yrs and they all ignored me..I just turned 40 on 9/3, and my dr.told me I was obese and to have a gatric bypass.. I'm malnourished and anorexic trying to get out of my fat suit for about the past 10yrs now. I have three other dr.s who DO believe me but they say I have lymphedema..THanks for getting the word out..  |
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11 Judy Tenney
jtbrookie@yahoo.com
Location: Jeffersonville, VT
IP: 72.92.131.189
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| Thursday 07-May-09 18:03:27 CDT |
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| Thank You for putting up this website. I will share your website with two women I know who have suffered with large legs for years - this may give them hope and an opportunity to connect with others. |
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10 Dr. Molly Keefe
doctormolly@comcast.net
http://drmolly.com
Location: St. Albans, VT
IP: 71.254.15.236
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| Tuesday 28-Apr-09 15:59:10 CDT |
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| I have seen first hand the devastation this disease produces. I am currently researching the connection between nutritional defiencies and this disease. I will keep you posted. I am also exploring cold laser therapy connection with this disease. |
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9 Cheryl Waters
Location: Stillwater, FL
IP: 74.79.123.230
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| Monday 27-Apr-09 17:05:30 CDT |
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 Bless you for your work. This won't be treated until we all work towards research. |
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8 Karey
kareygwinn@yahoo.com
Location: Schenectady, NY
IP: 24.29.73.236
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| Saturday 14-Mar-09 18:26:57 CDT |
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| I see this as a real problem for many women. I hope that these women, who suffer from this disease, can find the help that they need. Has anyone looked at ultrasonic liposuction? Perhaps that is the most reasonable solution. Anyone know of a good doctor. |
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7 Pamela Harrison
ozziespamela@yahoo.com
Location: US
IP: 69.242.154.47
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| Tuesday 03-Mar-09 12:56:02 CST |
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| Great site! I have been diagnosed with Dercums Disease, Lipedema and Lipolymphedema. We need to do everything we can to raise awareness of these conditions! |
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6 Sema
enchauteguis@hotmail.com
Location: Philadelphia, PA
IP: 155.247.211.101
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| Friday 27-Feb-09 15:43:37 CST |
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| Great site! It's wonderful that you are trying to raise awareness. I never heard of this disease. Only ever heard of Lymphedema, which an ex boyfriend of mine had. I read that your illness-Lipedema can lead to Lymphedema. Interesting. Keep p the good work! |
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5 Jodie
gardenia@gmail.com
IP: 96.236.0.134
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| Monday 09-Feb-09 10:05:47 CST |
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| I am stunned. Can this be me? Is there no hope? |
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4 Lori
IP: 158.73.247.15
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| Wednesday 04-Feb-09 13:55:05 CST |
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| I don't think the links page is working properly. There are no links and it is all in a foreign language. |
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3 Skippy
skippydo@gmail.com
IP: 74.79.123.230
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| Tuesday 27-Jan-09 16:30:53 CST |
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| Thanks for caring. It must hurt to care so much about others. I gave up a long time ago. |
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2 Katya
IP: 72.226.124.247
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| Sunday 30-Nov-08 19:27:38 CST |
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| This was so helpful! As a woman struggling with weight loss and seeking to maintain a "healthy" weight as recommended by the medical community I often feel silenced. This is clearly a pattern that is destructive to women in multiple ways. It is time patients are heard and taken seriously. Thank you!!! |
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1 Test One
IP: 74.79.123.230
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| Sunday 30-Nov-08 18:40:14 CST |
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| Moving right along. |
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Guestbook
Total Records:18
